Wednesday 10th June 2020
Day 268
So I just got a call from my oncology doctor and she said that ‘I tested very positively in another sense, this morning. I tested positively toward negative, right? So I tested perfectly this morning. Meaning I tested negative. ... But that’s a way of saying it: positively toward the negative.’
No, my doc knows what she’s talking about and said that the scan showed that I am now in complete remission from the lymphoma.
Now just to prevent it coming back… again.Wednesday 10th June 2020
Still Waiting
I hope everyone has been staying alert! The world has all gone a bit chaotic over the last few weeks, I’m still in my bubble though and not moving from it unless I have to (which I have had to the last couple of days).
Since the last post I’ve gone a bit wayward, not being as creative with things not reading as much and mostly sitting watching tv and/or playing on the computer, a bit of a shift from what I had been doing but its something a bit different and it’s good to mix things up a bit. I’ll get back reading again and also be a bit more creative.
I have upgraded my photo and video editing software, but I’m limited to shots that I already have taken. I do have 1000s of pictures and might be worthwhile going back through some that I haven’t looked at in a while and see if there are any nice ones I may have missed first time round and touch them up a bit. It’s never anything much maybe a bit of contrast or toning and brighten it up as I take the shots a few steps down so it picks up the color a lot better making them naturally more vibrant.
I never really took many videos though which is something I’m going to start doing more, especially with the 360 camera, this will fit in well with another project that I have planned for the website, but again this is still on hold and will continue to be I’m guessing until next year. Will be nice visiting places I haven’t been to in a while.
My treadmill has finally arrived!!1! Exciting times, I overdid it on the first day and felt it for a few days after but I didn’t let it stop me from going on it each day, I never let it stop me before and it’s not like I’m REALLY pushing it or anything so was in no danger of overdoing it. It’s so nice though to get walking, and mixing it up with a bit of cycling too.
So on to the last couple of days where I’ve had to leave the house. The First was up to the Royal for a PET scan, I had a decent sleep the night before which would have been better I didn’t as I had to lie down for an hour for the injection to get round me, I couldn’t sit and read which I’d planned to do. And then another 30 mins in the machine, would have been better just dosing off.
The next day, today, I went up to speak with the BMT (bone marrow transplant) doctor, gave bloods and decided to wait out in the car rather than the waiting room, there were too many people there for comfort. Seemed to take forever though, while waiting the transplant nurse phoned me to get details of siblings to get them tested to see if they are able to be donors. There’s a 1 in 4 chance they are, and reduces the chances of other complications further down the line and speeds up the process too. Finally got to speak with the doctor and went through all possible things that can go wrong, which there are plenty of but… but the alternative is cancer coming back every few years and decreasing, with more and more limited chemo options each time and increased levels of toxicity, the bone marrow transplant may not prevent it, but it’s the only possible cure so let’s just hope it works, that would be nice. Even if it gives me a few extra years in between that would also be good. Again BUT there are a lot of tests that need to go well, an issue may be the pericarditis, also the lung surgery, also the osteoporosis, there are a lot of maybes, ifs and buts.
To me it’s a no brainer really. If all goes perfectly smoothly it could be as little as 6 weeks before I start getting the treatment, but it could also be 5 or 6 months, so I’ll not hold my breath. For now, just need to wait for the call from the doctor about the results of the scan if not gone to plan could change everything.
Until next time...