Sunday turned out to be not too dissimilar as to expected apart from falling asleep about six for a couple of hours which worked out in my favour, because of then I was able to stay up and watch the Super Bowl and still get enough sleep to be up early on Monday for the guy to come and fit the banister. It didn’t take him long and he done a great job. It has been helping me loads getting up the stairs and not as painful as I’m using the banisters to pull myself up rather than my legs to push up.
After that on Monday it was a pretty quiet day, I had food early in the evening so I was able to get and be at hospital without having to run to the toilet too much. This in a non-literal sense backfired. The actual appointment itself didn’t go too badly, the tests the GP done all came back negative so the hospital are doing more and extra bloods were taken for the osteoporosis doc too. This is when things always get confusing, do I still report to the GP about the stomach or do I now just do things through the hospital?
I was due to get my IVIG but with everything going on they decided to postpone it which was grand, meant less time there, but I did need to give a couple of samples although with eating earlier the night before and getting rid of everything before leaving, there was nothing there.
I ended up going back to my parents, which I normally do anyway and then back to hospital to leave them in. I was close to getting home when I got a call from the doctor and she wanted me to come back to repeat a test as the phosphate levels were dangerously low with the likelihood of staying in to get a drip, semi expected as I’ve been flushing everything out so fast but irritating at the same time.
I got home and grabbed the hospital bag and back to hospital again. I got there about four and at five the bloods were taken. It was a long wait for the results to come back which was grand as I was just reading, listening to music and expecting to stay the night anyway. About eight the doc came and said the levels had improved, at this stage I hadn’t been drinking and barely ate anything all day as I’d not been home.
When giving me the results she said I would be able to go home, but it didn’t feel like a “you can go home right now” so I didn’t pack and get ready to leave right then and sure enough she was back a few minutes later to tell me another level was now high, think it was the lactate levels which would mean I’m dehydrated unsurprisingly.
I’d pretty much only had a coffee about eight hours before and hadn’t been drinking as I was expecting to get the fluids. This annoyed me as I knew what the cause of this was and how easy this specific thing could be fixed and be able to myself. And yet I’d have to sit around for eight hours getting a drip and staying over after and quite possibly with everything that’s going on with the lungs, legs and diarrhoea they more than likely keep me in until things were resolved. I think if they had’ve just started the drip before telling me I could go home and not keeping me in just for the dehydration I wouldn’t have been annoyed.
They ended up repeating the bloods about an hour later at nine-ish, so I’d already been there for five hours and only two blood samples taken and was expecting another long wait for them to come back. By that stage it would be too late and would probably have been moved to another ward where I would have to stay the night either way and then probably no matter what potentially be kept in for the reasons above. The tablets normally come round about nine, later than I normally take them, and the ward I was in I know don’t stock all my tablets, so I would not be getting my tablets just to get some fluids rather than going home and getting all my tablets AND taking fluids to rehydrate which just compounded my frustration.
Thankfully the results came back really quickly and the levels had dropped because I drank a couple of glasses of water and so I was told I could go home… again, this time I didn’t give them time to change their minds, I packed straight away and went out to the nurse’s station just to be sure and they let me go. Out the door and decided to get some petrol for while I was close to somewhere cheap. Was nice driving through town and seeing busy streets with people out drinking, clubbing and generally having a good time.
Home, a bit of TV, some stew, pint of juice and bed!
Wednesday I was still a bit annoyed about the whole thing, I know they were looking out for me and making sure everything was ok, but it just feels like sometimes people can be over protective and considering there were obvious reasons for things, it just gets frustrating, very frustrating, despite the good intentions. But I keep it to myself and vent after rather than to the people at the time, or at least I try to.
Wednesday because of eating so late, I was pretty bad a bit later in the morning than normal and lucky I wasn’t going to hospital that day, finally it settled and was not a mad rush to get to the toilet each time. I had counselling in the afternoon which I quite enjoy, feels more like a friendly chat than anything but it’s very helpful and getting new ideas for different things.
The last few days I’ve been thinking about when things got really bad mentally for me and everything now is so much worse than then, with the lungs now being an issue, whatever this infection thing is, the general aches and the legs being a LOT worse than then which was the major issue at the time, things feel a lot better and I’m able to cope a lot better, mentally, without actually being able to cope any better, physically.
Today I was having a lazy day with extra pain meds to take the edge off and done a few things out of the house that needed done, they could be done early and I got them out of the way. Bit of lunch and then for some reason I started looking at ant farm videos…. And not alien ones…