The next week continued as the previous time I got out of hospital, a lot of running to the loo, a lot of not feeling great and a lot of sitting around. My liver and kidneys seemed to be having a rough time trying to get out all the rubbish that's inside me and they were making me feel rough too, increased my fluid intake to try and help, with little success and was starting to think I might have to phone the hospital up if it doesn't improve. Eventually they did though by about Thursday. Bit of a relief. The tinnitus has continued but not as bad as the weekend.
As before as after Wednesday things began to improved e and I started feeling a little better and my taste was starting to return too. Thursday I got out for a bit of a walk, not much just down to the postbox and tesco to get something for lunch and back home and sat in the garden read for a while, all covered up of course with no direct sunlight on me.
Friday I went for a bit of a longer walk with was nice until I started walking back down my street at the end and my legs had nearly completely given up on me, the avascular necrosis and osteoporosis seems to be getting generally worse, a mixture of sitting and lying around so much and with the stronger drugs I'm getting too.
Saturday I had a nice quiet day, watching Stargate and ... and that's it really, I'm sure there were a few games thrown in the too at one point or another, also I started eating my easter eggs now I have my taste and appetite back. Only bad thing about having the appetite back is the amount of junk I'm eating and crisps make me pimply and got some dry skin too so still continuing with the lots of fluids.
Sunday started something like Saturday sitting watching some TV with lewis and Caitlin, tried teaching them a bit of piano, which I was also "teaching" myself at the same time, k got a bit of twinkle twinkle learnt, they couldn't care they just wanted to make a racket. Later on in the evening my neck and head got a little sore and took some paracetamol which eased it and watched some more Stargate and motd2, poor Liverpool, getting beat by a better team.
When I was getting to bed my head was starting to hurt a bit again, one of the reasons I was going to bed, but my mum had went to bed at about 9 so I'm guessing she's not well, which is great cause I was sitting with her for a few hours earlier and no mention of it, even though I've spent the last 2 months avoiding people so I would not even have the slight chance of bumping onto anyone with even the sniffles. During the night I had a very broken sleep, up every hour or so and felt a temperature coming on and come the morning when I did get up I took my temp and it was 38.09°. The district nurse comes on a Monday so I waited for her to clean my PICC line, they normally come at 10 but as I need them to come early this time they don't. I phoned the hospital at 11, who phoned back and asked what was wrong, who then phoned back again saying to come up to get my bloods done between 1 and 2. Gave it a few mins and at 12 rang the district nurse... HQ? To tell the nurse that I will probably not be there by the time she gets here and to just leave it. Went and got sorted to leave and got things sorted for a stay, just incase. Then ding dong, was the district nurse, who then rang the hospital to find out if it was fine to change the PICC so another wait for that, turned out it was and got it done. She got the call not to not to call out while I was sitting there and another one after about PPI.
Finally got to hospital and they took bloods, I read and waited, by this stage I has taken some paracetamol as I couldn't be bothered with the sore head and temp anymore, so I was back to feeling normal again. They dome a few tests to check for meningitis etc because of the sore head and took some medical background and all that caper then went to check the counts, turned out the neutraphils were zero and so with that they want to keep me in. At this point all communication was lost and things just... happened/didn't happen. I was brought to a ward. Porter just turned up and took me, then when I got to the ward to the entry test for the hospital another porter turned up to take me for an xray, were there was no form for them to know what to xray and I didn't even know I had to got for one so no point asking me. After an hour they finally got it all sorted and I got back to my entry test. Started on an antibiotic and that was all that happened, then one of the nurses said my magnesium is low. Few blood pressures taken, asked the nurse exactly what's going on. So basically I have nothing to fight infection because I might have had an infection, but they don't like releasing people when their neuts are less than 1 and they are going to give me the antibiotic and see if they can do anything for the neuts and some magnesium supplements too. Was what I had thought the reason was, no point sending me home with some tablets then back a couple days later after catching a bug.
Next day after a lot of sitting around reading, I'm focusing on reading this visit, or at least trying to, the doc came round and said the meets where up to about 5 which is considerably better but the magnesium is still only 3.1 which is still very bad. I thought the way he was speaking after talking about WBCs that he was going to let me go home, which I didn't really want with my mum being sick. As long as I can still get the chemo next Monday I don't really care what else. But they said that might shorten the stay by a day or two and they're changing one of my tablets to another as it can cause a fall in magnesium but it also reduces the effect of a long term antibiotic I'm on so... its never simple.
Dad came up at lunch and said about my mum feel awful the other day whenever she got up which sort of peeved me off that she new fine well that she was sick and never said anything apart from a rash she got from some cream. Later he went on to say it was just stress... and my mum did too when she phoned later. But at least I get the evenings free from visitors to do what I want, as "nice" as visitors are, I much prefer it this way.
Anyway today has been pretty nice sitting reading and had a bit of a doze when the sun was shining in and the writing this, supper will be round soon so bossy nurse will close the windows,blinds turn on the side lamp and basically tell me to go to sleep and give her no work to do. She's not that bad really....