Hi everyone, so, it’s been a month, what has happened. Thankfully nothing catastrophic, the major pains haven’t flared up but the general day to day pains are increasing. My right hip, which was always a lot better than my left, is now on a daily basis worse than my left. Now since the last reduction the left knee is playing up badly.
It’s now pretty impossible to sit of lie in any way for any period of time (or instantly) being sore, the lack of sleep is really affecting the concentration levels and I’m finding it harder and harder to concentrate on anything such as reading of any tasks. Taking the extra pains meds contributes to this, for a while I was able to rely on a couple of hours each day where I would feel good and able to do whatever but this is no more. I could easily go 4 or 5 days where I don’t get this break, and there are still things that need to be done every couple of days or so.
It's not that I’m not able to do them at all, some days I’m not, on the others I really need to encourage myself to do them. As little as it is just going to the shop to get milk, bread or food, it’s a really big thing and not only is it sore it can be draining and have repercussions like being extra sore and tired after.
I’m still able to manage though but I’m getting less and less motivated to try things as I know it’s not just as simple as doing things, thought and planning has to go into every time I leave the house. Preparing to, during and preparing for after and suffering the consequences. That in itself can be draining. I miss the days of being able to just take a notion to go do something and going and doing it.
After last month’s reduction of tablets, the hospital decided to keep me on the dose and not try to reduce the steroids any more for now, maybe next time I go up they will, unsurprisingly they were concerned about the heart issues with it and if it was to happen again that I should phone them straight away. At the last hospital appointment, I got a bit lucky it all went very quick and smooth and just as I was finishing my infusion and getting the canula removed the fire alarm went off and we had to evacuate. Thankfully they had finished just then and I was able to go to the car and head home rather than having to stand around outside (I would have waited in the car).
With the lack of concentration and reading I have been watching more movies, a lot more movies. And for now I’m making most of my Omnipass and seeing as many films there as I can. The cinema I go to is pretty quiet at the times I go and I sit at the seats at the front just behind the disabled ones out of the way of anyone else. I think if it was to get busier and maybe in the Winter I will stop going, I don’t want to chance getting infections.
Speaking of infections, I woke up this morning and the back of my nose was sore, similar to the early stages of an infection. I do hope that it is something stupid that caused it though, like maybe snoring or something but normally when I snore it wakes me up and I generally don’t snore as far as I know.
Which sort of leads onto the next thing, I’ve been tempted to sort out the hospital bag. The last time I done this I ended up in hospital a few days later so I’m sceptical to do this but I think it needs done.
Another factor is that my laptop keeps crashing when I first turn it on, but then works fine after that. I’m just waiting on it going kaput which if the above happens will be very, very bad timing and so I’m thinking of getting a new laptop. I’m thinking of one that folds back into a tablet, I quite liked the chromebook that done that although I wasn’t keen on the chrome OS. Will have a look around though and see what’s on offer and whether anything jumps out at me.
For now I shall sit and vegetate watching films and hope that nothing changes. Until next time.