Hi everyone again except for you *fist bump*, hope you are all keeping well. Left it a bit to update as there wasn’t really that much to update on. I got the MRI scan pretty quick and showed that there was nothing so later that day I got out of hospital, only thing that has changed compared to going in is the increased dosage of Clexane, which are bigger in volume and needs to be taken twice a day rather than just the one in the evening. I was back at hospital the following Monday and they put me back on the Lenalidomide, chemo tablets, but they aren’t giving me the Retux this cycle just to try and help make sure the bug I had doesn’t come back and cause issues.
They have also reduced the Colchicine to one tablet every couple of days rather than every day, we tried to stop this a month or so ago and it caused me some issues so we’re going to try and reduce it slower to see if I can get off it as they’re quite keen to, especially before the BMT. So far it has been pretty good. I didn't notice any symptoms until this morning when I woke up with a tightness around my heart, I got up and had a bit of a walk around and got a drink which seemed to settle it, and I was due the tablet again this morning so will hopefully ease things again for a couple more days.
I’ve felt a lot better the last couple of weeks, and feel I need to do a bit of exercise again to try and build things up, but at the same time I don’t want to take any chances. I know I’ll start off slow and minimal amounts and build it up when I can but knowing in a few months I’ll be back to where I was again sort of puts me off putting the effort in now and just wait. I’m not too concerned about it but just have no strength at times for things and everything Is a real struggle to do.
Apart from the hospital stuff, things haven’t exactly been exciting, My Virgin Media contract is up next month so I got in contact with them and have increased my BB for pretty much the same price as I was on, which suits me grand, I could probably have got something a bit more suitable for me and a bit cheaper, and not as overkill but it’s reliable and I have plenty to watch and choice so I’m happy enough. I spent most of Saturday evening getting the house all set up with the smart plugs and lights and also updating the server. Was having issues with storage on the Pi, trying to find the file that was causing the problem was impossible to find just using FTP as I had been looking before, so finally linking it up to the TV I was able to find it pretty quick, 20GB error log which had been building up for ermm, I dunno 4 or 5 years? Gone now so I shouldn't have any problems for a while hopefully.
I’ve also started to cook properly from scratch rather than the mostly processed foods that I would have had. I seem to be enjoying eating a lot more, even though I need a lot of practice to get timings and portions right, even if things are a bit overdone or too much seasoning etc, but it’s a learning curve and pretty damn nice even when not quite right. I’ve managed to get rid of all the products that have milk in them, there were a lot of things that you wouldn’t think would have milk in them that do, salt and vinegar crisps being one, more the “fancy” crisps like doritos or sensations, Tayto seem to mostly not use milk in theirs and the brown multipack that I get doesn’t have any flavors with milk in them thankfully.
And so to today again, I was up at hospital for my last appointment this year and all was grand counts all in a good range and no signs of infection, so next time I’ll be back will be for treatment and hopefully won't need to get in touch about my heart. Home and had a bit of food, watched the last 2 episodes of the Mandalorian, will need to go for a nap this afternoon so will stick on some rubbish I have recorded and doze off.
Hope you all have a nice build up to Christmas. Update again soon enough.