Hi everyone, how’s everyone keeping? Been a month since the last update and to be honest it’s felt it. I got the broadband set up easily enough, was pretty much just plug it in and off it went. I didn’t bother initially setting up the webserver. The next day I was at hospital for the regular check-up and infusion. I got the bloods done and while I was waiting to see the doc the nurse came and got me to get the infusion so I wasn’t waiting around any extra and once I finished that I was straight in to see the doctor.
It was the first time I’d seen the main doctor in a while and he was happy with how the transplant had gone and how the counts where. He was also quite concerned about he numbers of covid and one of the reasons they pushed me through so quick was to get me out of there, he also said without saying to go into a personal lockdown. Not that that makes a difference to me as I really don’t do anything with people and rarely go to places where there are people. They also changed my appointments to be every four weeks coinciding with the infusion and skipping the appointment in between so rather than every two weeks its every four weeks.
I would prefer to be up every couple of weeks to keep an eye on things and to keep them updated on things too but with the chance of infection and with what happened to follow.
Over the next few days I did start to try and get out walking a bit more and going on the exercise bike a bit, nothing too extravagant but it was something and a step in the right direction. That weekend I went to a light show with the family in Hillsborough, it was really nice but cold.
But good things, as always, are short lived and Monday morning I woke up in agony and as the day went on it was getting worse and worse. I can only think it was the way I was lying and it aggravated my back, I think I was lying on my right and the pressure on the rib just put it out of place. The strange thing is it was more the muscles at the front that were tensing up and when I was standing up I couldn’t breathe because of it. It was unbearable and just got gradually worse for a few days until it peaked and then has been gradually getting better, still not 100% but certainly better than what it was.
During this I’ve also managed to hurt my knees, dunno what’s triggered that but they hurt considerably and now rather than just the one knee it’s both. It’s the top of the kneecap and sore to tough so I can only guess it’s the avascular necrosis. Also since I done my back again the feeling like crap in the morning is also feeling like crap in the evening, I’ve no idea what is causing it but it’s pretty much been ongoing for too long a time to be nothing, my neck is sore too.
Initially I thought I was maybe just coming down with a cold and the glands were a bit swollen but it feels more like when I had the clot in my neck before so with sitting around and with again the ongoing cough that I’ve had since getting my lung chopped up may have strained it or something.
The lungs are both sore as well, across the breast of my right and the diaphragm of the left, and when I put any more effort than normal into anything like carrying a bag, walking my lungs feel like they’re full of crap and sore when I breath in.
Last week I moved a duvet down onto my sofa to make it a bit more comfortable to sit on, although I sit on the old man chair, I didn’t realise at the time but for a few days I just kept falling asleep, and then asleep again and again and then getting a full nights sleep too. I dunno what made me think of it but I moved the duvet back up to the spare room and I stopped falling asleep. I could smell the detergent off it so I’m obviously still reacting to that and that was causing me to fall asleep.
I’m just fed up of being fed up of being sore, once I feel I’m starting to get a bit better something crops up and I’m right back to where I was.
Apart from that, there’s really nothing to update, I’ve not been able to do anything, I’ve not been able to do anything. I took my tablets just before starting this and was hoping by now I’d be feeling a bit better but not yet, I’ll be heading to bed soon as I’ve hospital in the morning so a relatively early night hopefully…