Hi everyone, I’ll keep this fairly brief or at least try to, last week continued with the cough but much, much worse I pulled a muscle in my neck and every time I cough it’s absolute agony, swallowing and moving is also really sore.
Thursday when I got to hospital I didn’t think much apart from the pain. Got the bloods taken and the checks all for the chemo, temp was up a bit but didn’t think much of it. Waited out in the car and then went to see the doc and he gave me a nasal spray to try and help with the nose which will hopefully in turn help with the cough.
Once in the treatment room I got my own bay and waited there. It was only when I was there they took notice of the temp being up earlier and checked again and seemed to have gone down but they wanted to check the bloods to see if the infection markers where up, which it turns out they were and so they delayed the treatment till next week and have put me on antibiotics to try and help with things. Waited around for them then on home.
My main issue was the pain in my neck, it’s so incredibly sore and next to no relief from it. It wasn’t until Saturday night when I got my first fever, temp went through the roof and was frozen to the bone so I just lay on the sofa and put the duvet round me, took a couple of paracetamol and curled up in a ball. I fell asleep and woke up feeling a fair bit better but still pretty rough. It didn’t help that I fell asleep about 6 or 7 and woke up near 11 so despite getting only a couple hours of sleep each night I doubt I’ll even get that tonight. I did end up getting a couple more hours later in the night and a couple of naps during the day this pretty much the only way I get sleep as I wake up every 2 or 3 hours needing to cough or choking and when it hurts as much as it does it really makes you dread going to sleep but it’s pretty essential.
The same thing again on Sunday another temp spike in the late morning and a fever in the evening and again on Monday although the cough didn’t seem quite as bad. Today Tuesday I only got a few hours sleep and am shattered but when I woke up I was completely bunged up and needed a few good coughing sessions to clear things but still really really sore. Temp hasn’t gone below 37 since Saturday and the consistent pain seems to be more in the gland at the back of my jaw and ear. I can barely eat the last two times I’ve tried to have a proper meal, I've felt a bit sick and had to lie down and after dozing off I’ve felt somewhat better. My stomach seems to have shrunk something shocking too, I can only eat fairly small amounts before I just can’t eat any more.
It just seems like there’s no end, I don’t think they’ll give me the treatment again this week, I’m certainly much worse than I was last week, seemed to just be the very start of it on thursday. The cough has been going on for months but the fevers are new, it would be so much easier if the pain settled, I could cope without that much easier. A decent sleep and feed are a forgotten memory. Hopefully things will start to improve soon.