So after my last post the counts were all still pretty high, still the only time I've had blood with my injection in the morning and I don't seem to get any seepage from getting the blood taken, very strange turn of events but at least the counts were good, they reduced my steroids marginally and didn't get the n-plate again.
The following week in hospital I was told I had an appointment on Friday about my elbows the same place I am to go to next Wednesday and hopefully might be able to get it all done at once but there is the chance that I might need to get a steroid injection in my foot and or elbows which will put me out of action for a few days. I was supposed to be off next Wednesday to Tuesday but added an extra day with the possibility of getting the injection. The counts had dropped a bit more but where still at a good level and they have kept everything the same.
Friday up to get my elbows checked and thankfully the doctor looked at my foot at the same time. The foot looked all fairly normal as did the elbows, there was a bit of fluid and the tendons looked a bit tough but nothing unusual and didn't think that the injection would have helped at all, I got an x-ray of my elbows, bloods taken and she said about getting an MRI also. Since we got everything checked today there is no need to come back next Wednesday, just to go to the normal appointment.
Wednesday came and the counts had dropped by another 100 or so, but they are still a good level, looking at the counts from Friday also they seem to be dropping by about 15 each day, hopefully this will settle off and the counts start to stay stable again.
On paper everything seems to be pretty good, counts are above normal for me, tablets lower than they have been for a few years, leg is improving, and yet I don't feel like it's going great, I'm on edge that things will crumble at any time.
I have been able to get out walking a bit more but I can still notice the clot and tiredness, I really need to get back in to shape again, but it's a real struggle, I have little motivation and just want to sit around and vegetate, I really need to push myself to do anything.
Hopefully soon I'll not need to push myself and will have the motivation to get out and about.