I everyone, it’s been a few weeks since I updated this but things have been moving a lot slower than I had been expecting and I guess slower than the oncologist thought as well. I’ve kept things low key still over the last three weeks, mostly because I feel rough and unpredictable, one minute I could be feeling great and 5 minutes later I could just get really drowsy and nauseous for no apparent reason. It’s strange I can go an hour on the treadmill and feel grand and yet stand doing the dishes and I’m falling asleep and losing all my energy.
There was one night I went to bed early just as I was really tired then woke up at stupid o’clock and sat around a while but wasn’t getting back to sleep so I decided to go for a walk and was back just after 7. It was the first time I’d been out when it was mizzly, I love walking in the rain especially when I’m prepared for it and it was so nice just doddling along listening to the rain and it hitting my face a little. It was just unfortunate that after I did feel rough but nothing much more than what I normally would have if I’d just stayed in and wouldn’t have had the pleasant experience. At least it meant I could have a lazy day and not have to think about going on the treadmill to get my steps.
Apart from that, I literally have been sitting around watching tv and reading, there’s a lot of sport on though, between football, cricket and NFL, then there’s the odd rugby game, speaking of which there was a fantastic game this morning between New Zealand and Australia, the last few minutes were incredible, I’ll not say anything about it but if you get a chance watch it from about 75 mins till the end.
I had an appointment with ENT a couple of weeks ago, but was a bit of waste as it was pretty much “we’re going to do a biopsy of the active region at the back of your nose” which is what we already knew, so the fact I had to go up to hospital and wait around to be told that seemed a waste and after that I got a letter out saying I had been put on the urgent list to get the procedure done.
Last week I got a call on Tuesday from the hospital saying I’d been referred by my cardiologist to get an MRI scan of my heart. First I’d heard I even had a cardiologist doc since December when I had the fluid drained from around my heart was the last time I'd seen one and that was in the City, this doc is in the Royal. Anyway they requested I was to get the scan and they had space the following day which I took up and on Wednesday afternoon I got my scan, have the appointment with the doc towards the end of the month so hopefully it will be a “we’ll keep an eye on it but we don’t need to do anything now”. I do still get a tightness and cramping in the area and did during the MRI too.
The morning of the MRI I got another call this time about getting the biopsy which will be next week, but also had to get a covid test before going in, I had that this morning which was grand have had the swab tests a few times before so I knew what to expect. The nose poke always makes my eyes water and didn’t help that I’ve already got a tingly nose at the best of times. Again hopefully won't hear anything about this tomorrow and will not have to reschedule all my appointments over the next few weeks, will be a nightmare if that was the case. As I’ve not been out interacting with anyone I’d be pretty shocked if I was to come back positive, the only time I think of when I could have got it would have been at the Mater getting the MRI.
For now I isolate… more… I suppose the next post will be for day 400, the last 127 of which I've got at least 10,000 steps, it’s the one thing I really aim for each day. Wednesday when I’m getting the biopsy may interfere with it, but as I’ve nearly lost all concept of a sleeping pattern I could get the steps in before going to sleep the night before.
Anyway, the waiting is coming to an end and should get some answers soon and get on to some treatment and start to feel a little bit better soon and definitely ease the coughing, it's starting to hurt each time I do and I don't want to end up like last year when I was coughing up blood as well.